Paper Key : IRJ************917
Author: Aissata Konate
Date Published: 05 Jul 2024
Abstract
Albinism is a rare genetic condition characterized by a deficit in melanin production, resulting in a partial or total absence of pigmentation of the skin, hair and eyes ( Encyclopdie sus cite larticle Ngre. This condition affects people regardless of race, ethnic origin or sex, and presents significant social, medical and economic challenges. This article aims to examine albinism on a global scale, with particular emphasis on the situation in Guinea and the measures taken by the Government to combat discrimination and improve the living conditions of people suffering from it. Here, the main objective of this article is to raise awareness of the situation of people with albinism, by highlighting the challenges they face and highlight the actions undertaken by the government to support them. It is also about contributing to strengthening solidarity within the global community, as well as raising awareness of the need to protect the human rights of people with albinism and to combat violations committed against them. This article is based on a major argument based on the idea that people with albinism are often victims of discrimination, stigma, and social exclusion because of their distinct physical appearance. The myths and misconceptions associated with albinism fuel marginalization and physical attacks, which seriously undermine the rights and safety of people with Albinism. Thus, in this context, government action in Guinea and elsewhere is essential to guaranteeing the protection of the rights of people with albinism. These measures include raising public awareness, access to health care and education, and promoting social inclusion and employment for this vulnerable population. Based on the purpose of this article, a methodology will be established based on research, investigation, survey and reading of existing works to highlight the importance of protecting the rights of persons with albinism and combating discrimination and stigma. But also call for collective action by Governments, civil society and the international community to promote equal opportunities and respect for human rights for all people with albinism.Keywords: Albinism, Stigmatisation, Discrimination, Violence, Awareness, Empowerment, Government Action.
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